Financials
2022 990 2021 990 2020 990 Interested in seeing where the money goes? Check out our annual reports for more details. Please subscribe to our newsletter for updates. Read More »
Legs Against Lyme Sponsorship
On June 1, 2024 at 10am we will gather with Central New York's Lyme Warriors for the 3rd Annual Legs Against Lyme at Long Branch Park! The Legs Against Lyme Walk is not only the capstone to National Lyme Awareness Month (May), but also serves as a platform to bring together our community, support patients Read More »
Financial Assistance Programs
Treatment Access/Reimbursement Resources Community Health Advocates - Provides counseling services to help New York state residents understand their health insurance and gain access to the health care services they need. LivLyme Foundation - Application for financial support for children with Lyme disease ages 21 and under. LymeAid4Kids - If you suspect you have Lyme disease Read More »
Chris Winn
Hamilton, New YorkInfected: July 2017Diagnosed: March 2019Current health: Excellent but still face challenges "My advice for anyone going through this is to advocate for yourself, seek medical attention proactively and don’t give up." - Chris W. Read More »
Thank you for your response!
Your response has been registered. We won't "tick" you off with another email. See you at Legs Against Lyme this Saturday! Read More »
Lyme & Tick-Borne Disease Support Group
Support group adds Zoom link Our monthly support group has resumed and we have added Zoom access for those who wish to attend remotely! Zoom - https://us06web.zoom.us/j/85321732234 Join us on the 2nd Wednesday of every month for our monthly support group. Do you or a loved one have it? You are not alone. Better together. Read More »
Karly Grifasi
Syracuse, New YorkInfected: UnknownDiagnosed: Summer 2021Current health: Good - no known symptoms "I sought out multiple opinions, all with varied answers, which led me to feel “lost” and unsure of what I truly needed." - Karly G. Read More »
Nicole Sommavilla
Syracuse, New YorkInfected: Presumed February 2013Diagnosed: 2017Current health: Functional and working to stay in "remission" "Never give up on yourself. Never lose hope. Never stop being your own advocate. Wherever you are in your struggle, know it can always get better!" - Nicole S. Read More »
Jonah Cummings
Syracuse, New YorkInfected: Presumed Early Summer 2017Diagnosed: Early Fall 2017Current health: Not 100%, but treating currently "If you are suffering from Lyme and/or coinfections, be your own best advocate, find an LLMD who can help you on your journey, and never lose hope that you can heal!" - Jonah C. Read More »
Royale Scuderi
Madison County, NYInfected: 2010?Diagnosed: 2011Current health: Many years and thousands of dollars later I am functional and relatively healthy, but have chronic pain and symptoms. "Doctors don’t always have the answers to very complex issues." - Royale S. Read More »
