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Patient Panel Day 2! 🎉Image attachmentImage attachment
Patient panel underway at #lymesummit2023 #lyme #lymedisease #lymeawareness
Thank you, Selkirk Shores 5th grade! Tick Truth or False was a blast.

Photos from Anne Messenger’s post See MoreSee Less

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Is this archived and available to view? I have Alpha Gal Syndrome, positive for Rocky Mountain Spotted Fever, and Mast Cell Degranulation/MCAS. I have seen so many doctors, was musdiagnised, all supplements and meds have made me worse due to mammalian byproducts, dairy byproducts, carrageenan, or high histamine. My symptoms are all myalgia and Arthralgia from exposure flare ups, as well as blood pressure plunges due to exposure. I have epi-pen, but no doctor can tell me when to use it! I need help finding a doctor on the Eastern Shore if ND that can help me. I have driven to Baltimore and Annapolis to find a specialist. None knew of the dangers and depths of AGS or RMSF, and knew nothing about mast cell degranulation/histamine intolerance or MCAS. I would love to watch these. I have been watching Dr. Commins lectures, but my doctors aren’t educated in any of my conditions! I need help. Twenty months of hell and pain so far!

Is this archived and available to view? I have Alpha Gal Syndrome, positive for Rocky Mountain Spotted Fever, and Mast Cell Degranulation/MCAS. I have seen so many doctors, was musdiagnised, all supplements and meds have made me worse due to mammalian byproducts, dairy byproducts, carrageenan, or high histamine. My symptoms are all myalgia and Arthralgia from exposure flare ups, as well as blood pressure plunges due to exposure. I have epi-pen, but no doctor can tell me when to use it! I need help finding a doctor on the Eastern Shore if ND that can help me. I have driven to Baltimore and Annapolis to find a specialist. None knew of the dangers and depths of AGS or RMSF, and knew nothing about mast cell degranulation/histamine intolerance or MCAS. I would love to watch these. I have been watching Dr. Commins lectures, but my doctors aren’t educated in any of my conditions! I need help. Twenty months of hell and pain so far!

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Awesome info from Dr. Rob Lochhead
-Medical College of Wisconsin

Set up on Day 1 of #lymesummit23 by Royale Scuderi, Executive Director of the CNY Lyme and Tick-Borne Disease Alliance. We’d had much discussion of and voting on eventual case studies to be presented on Day 2. See MoreSee Less

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