Tick prevention in the yard
Preventing Ticks in the Yard — Guide from the Centers for Disease Control and Prevention demonstrates how to make yards less attractive to ticks through landscaping.
Create a Tick-Safe Zone — Cornell Cooperative Extension of Onondaga County shares tips on how to create a tick safe zone at home.
25 Plants That Repel Ticks — Happy DIY Home lists 25 plants that can repel ticks in your yard.
Protection for people
Preventing Tick Bites on People — Centers for Disease Control and Prevention offer tips on tick bite prevention.
TickEncounter — University of Rhode Island provides information on protective dress, clothing repellant and daily tick checks.
Find the Repellent that is Right for You — Use the EPA search tool to help you choose the repellent product that is right for you.
Tick Repellant Roundup — Use this Tick Repellent Roundup from Global Lyme Alliance to help understand the various on-skin and on-clothing repellent ingredients and their pros and cons.
Protection for our animals
Animal Lyme Testing for Dogs and Horses — Cornell University, College of Veterinary Science lab offers an antibody test for the causative agent of Lyme disease.
Save the Tick and send it out for testing! — TICK TESTING CURRENTLY PAUSED - Upstate Medical University’s Thangamani Laboratory provides free tick testing within New York State as part of a research project.
Alternate tick testing sites — While Upstate Tick Testing is on pause, visit the Pennsylvania Health Dept website for a listing of fee-based tick testing options.
What diseases can ticks carry? — The CDC provides an overview of diseases carried by ticks, along with common signs & symptoms, diagnosis and treatment.
When should I be concerned? Signs and Symptoms of Untreated Lyme Disease — Untreated Lyme disease can produce a wide range of symptoms, depending on the stage of infection. These include fever, rash, facial paralysis, and arthritis. Centers for Disease Control and Prevention provide a quick guide of common symptoms to look for in early and late-stage Lyme Disease.
Stages of Lyme Disease — Lyme disease occurs in three stages: early localized, early disseminated and late disseminated. However, the stages can overlap and not all patients go through all three. Global Lyme Alliance discusses common indicators of the different stages of Lyme Disease.
Do You Have Lyme Disease? — Lyme Disease Symptoms Checklist at lymedisease.org
Find a doctor — See your primary care doctor or an infectious disease specialist for diagnosis and treatment. Visit our local provider page for additional options.
Most people who are diagnosed properly with Lyme disease and treated effectively, go on to live normal lives, however, research suggests that approximately 15% to 20% of those diagnosed and treated do not respond completely to treatment and experience ongoing symptoms.
Chronic Lyme disease: Everything you need to know — Medical News Today discusses possible causes, diagnosis, and treatments for Chronic Lyme Disease.
Lyme disease: Resolving the “Lyme wars” — Harvard Medical School provides insight into the main controversies surrounding Lyme disease and Chronic Lyme or Post Lyme Treatment Syndrome.
What is PTLDS? — Post-Treatment Lyme Disease Syndrome (PTLDS) / Chronic Lyme / Persistent Lyme are names of a disease that results from an infection with Borrelia burgdorferi, which is carried by ticks.
Tick-Borne Diseases — The CDC has published a Reference Guide for Healthcare Providers to provide healthcare workers with up-to-date information.
Diagnosis, Treatment and Testing — The CDC provides recommendations on diagnosis, treatment and testing and case forms along with learning tools for clinicians.
IDSA Lyme Disease Guidelines - 1990 — Clinical practice guidelines developed by the Infectious Diseases Society of America in 1990 to assist practitioners and patients in making decisions about appropriate health care for specific clinical circumstances. New Draft IDSA Lyme Disease Guidelines are being reviewed currently.
ILADS Evidence Assessments and Guideline Recommendations in Lyme Disease — International Lyme and Associated Diseases Society details their clinical practice guidelines - Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease.
Lyme Education for Healthcare Professionals — The CNY Lyme & TBD Alliance, in partnership with SUNY Upstate Institute for Global Health and the Trudeau Institute, hosted a Lyme Summit to provide CME continuing education for healthcare professionals to learn about diagnosing and treating Lyme disease and other tick-borne illnesses.
Tick-Borne Disease Research
Anti-tick Vaccines — The Thangamani Lab at Upstate Medical University is developing novel anti- tick vaccines and therapeutics to prevent and control tick-borne diseases such as Lyme disease and Powassan encephalitis. The lab has identified multiple candidates and is currently validating their efficacy in preventing tick bites and tick-borne disease transmission.
Vector-Borne Disease Ecology — The Leydet Lab at SUNY College of Environmental Science and Forestry is interested in understanding complex vector-borne disease systems. They are using tick-borne diseases, to identify factors that influence the ecology of pathogens in vector-host systems and how this affects human health.
Community Engaged Tick Surveillance Data — The Thangamani lab at Upstate Medical University is tracking the emergence of ticks and tick-borne diseases in New York. The data from this research will allow improved understanding of how climate change and human behavior, accelerates the spread of ticks and tick-borne diseases in New York.
Clinical Trials
Mucosal And systEmic Signatures Triggered by Responses to infectious Organisms (MAESTRO) — Advancing understanding of chronic illness following infection and identifying novel biomarkers of Lyme disease and Long COVID. The MIT MAESTRO study leverages leading edge technology through collaborations with academic and industry partners. The goal of our study is to investigate why some people develop chronic illness from acute infections using the lens of both chronic Lyme and Long Covid - while also answering one very important question: Who is likely to develop chronic symptoms after infection and why?
Child Outcomes after Lyme Disease in Pregnancy Study — Children’s National Hospital and Research Institute is conducting the first study on long-term child development after in utero Lyme disease exposure.

SEE THE STATISTICS

In general, it is estimated that only 1 in 10 cases are actually reported to the Centers for Disease Control and Prevention (CDC), making the suspected cases of Lyme disease much greater. For recent surveillance data visit the CDC website.

CDC estimates of the Spread of Lyme in US as of 2018

SUNY College of Environmental Science and Forestry (ESF)

Brian Leydet, PhD, at SUNY ESF states, “Lyme-related statistics are dire: [With] the age breakdown (nationally) you can see that ages 1-4 and 5-14 have pretty high burdens. If you tie this in with the CDC report from 2010 showing the estimated number of clinical cases is 106.6 per 100,000 or 10 fold higher than the reported/surveillance national rate of 9.4 per 100,000 it’s sobering to think that an estimated 15,000 (90 per 100,000;1-4) and 65,000 (150 per 100,000; 5-14) children get a Lyme diagnosis every year. If the studies on (Post Treatment Lyme Disease Syndrome (PTLDS) are accurate (and can be evenly applied to all ages) 10-20% of these children will have symptoms even after treatment possible for the rest of their lives……. A problem!


Age group burden 2018 (Most recent data for US using specific CDC notifiable reporting criteria)

<1=0.61 per 100,000
1-4=7.23 per 100,000 (1,149 cases)
5-14=12.44 per 100,000 (5,089 cases)

Stats above provided by Centers for Disease Control and Prevention Annual Data Tables

15-24=6.86 per 100,000 (2,938 cases)
25-39=6.48 per 100,000 (4,337 cases)
40-64=11.38 per 100,000 (11,738 cases)