The Central New York (CNY) Lyme and Tick-Borne Disease Alliance (“Alliance” or “we” or “us” or “our”) respects the privacy of our users (“user” or “you”). This data privacy policy applies to the collection of information, including information collected on our website, other media form, media channel, mobile application or via other means related or connected thereto (collectively, the “Site”).

By submitting your information to us or any of our staff, you consent to the terms and conditions of the policy and to our processing personal information for the purposes stated below. As we continue to implement new technologies, this privacy policy is subject to change. For that reason, we encourage you to periodically review our updated privacy policy.

“Personal Information” is information that identifies you personally, such as your name, address, telephone number, or email address. The Alliance collects and stores personal information that you share with us. Below are examples of ways in which we may collect your information:

When you request information via one of the email addresses identified on our website, or otherwise contact us in person, by phone, or email, with an inquiry. We may then collect information such as your name, address, email, or telephone number in order to respond to that inquiry.
We may collect your name, email address, telephone number, and other contact information if you register for and/or attend an event.
We may collect information such as your name, email address, telephone number when you make a contribution, either through our website via Blackbaud Raiser’s Edge platform, over the phone, by mailing in a check, or any other manner in which you might make a contribution.
When you make a donation through Blackbaud you may be asked to provide certain contact information (such as your name, address, telephone number and e-mail address) and billing information (such as your credit card number and expiration date) in order to enable your donation to be processed and a confirmation to be provided to you. CNY Lyme and Tick-Borne Disease Alliance will not have access to the complete credit card information that you submit (although it may retain the last four digits of your credit card number in order to process any refunds); and Blackbaud will be entitled to use such information solely for the purpose of processing the transaction and permitting you to access your transaction details. Blackbaud’s privacy and security policies are available at

The above list provides a sample of personal information that may be collected by the CNY Lyme and Tick-Borne Disease Alliance. From time to time, we may collect personal information from you in ways not described above.

Non-identifying information our servers automatically collect when you access the Site, (e.g., log files, cookies, Internet tags, web beacons, etc.) will be used to (a) monitor the operation, technical functions and quality of the Site, (b) compile general statistics regarding use of the Site, and (c) analyze demographic information about the Site’s users. We may also use such information for research or improvements of the Site and the services we offer you.

The Site may contain links to third-party websites and external services, that are not affiliated with us. Once you have used these links to leave the Site, any information you provide to these third parties is not covered by this privacy policy, and we cannot guarantee the safety and privacy of your information. Before visiting and providing any information to any third-party websites, you should inform yourself of the privacy policies and practices (if any) of the third party responsible for that website, and should take those steps necessary to, in your discretion, protect the privacy of your information. We are not responsible for the content or privacy and security practices and policies of any third parties, including other sites, services or applications that may be linked to or from the Site.

CNY Lyme and Tick-Borne Disease Alliance respects and values the trust you place in us when you give us your personal information and is committed to maintaining the confidentiality of that data.

CNY Lyme and Tick-Borne Disease Alliance restricts access to personal information to those employees and volunteers who need to know that personal information to provide our services to you.

We will not trade, share, or sell a donor’s personal information, collected on the website or through any business activities, with anyone else.
Donors may opt-in to share testimonials, which may be featured on our website, social media or other publications.
Donor names may be featured in recognition lists with other donors at their associated giving level in publications such as our website or annual report.
We will collect payment information, billing address, and other information necessary to process a donation or event registration.
We will use your information to comply with the law or in the good faith belief that such action is necessary to conform to the requirements of the law or comply with legal process served on us, protect and defend our rights, or act in urgent circumstances to protect the personal safety of others.

Except as described in this Donor Privacy Policy or at the time we request the information, we do not otherwise disclose your personal information to any third parties. Further, we will not sell or trade your personally identifiable information to any third parties.

We use administrative, technical, and physical security measures to help protect your personal information. While we have taken reasonable steps to secure the personal information you provide to us, please be aware that despite our efforts, no security measures are perfect or impenetrable, and no method of data transmission can be guaranteed against any interception or other type of misuse. Any information disclosed online is vulnerable to interception and misuse by unauthorized parties. Therefore, we cannot guarantee complete security if you provide personal information.

If you have questions or comments about this policy, please contact us at:

Central New York Lyme and Tick-Borne Disease Alliance
131 West Seneca Street, # 9
Manlius, NY 13104

Last updated November 12, 2020