CNY Lyme and Tick-Borne Disease Alliance
The Alliance is a collaborative of providers, scientists and community members who support research, drive education and promote awareness to combat tick-borne diseases.
A new report from the National Academies of Sciences, Engineering, and Medicine highlights the urgent need for more research into the persistent symptoms experienced by some people after Lyme disease treatment—like fatigue, pain, and brain fog.
The report calls on the CDC and NIH to set up coordinated research definitions, data standards, and long-term studies for what they call Lyme infection‑associated chronic illnesses (IACI), a term that includes PTLDS. Currently, there are no validated treatments, and the root causes of these ongoing symptoms remain unclear.
This report highlights what Lyme patients have been advocating for for decades. Seeing our country’s major health organizations teaming up to tackle this problem provides hope that one day we may better understand chronic Lyme symptoms—and develop proven, effective treatments to address them. 💚
#LymeAwareness #TickAwareness #Ticks #lymewarrior #tickprevention #lymediseaseawareness #lymedisease #ticks #LymeDisease
1 CommentsComment on Facebook
6 Years Strong! Milestones along the way. 🎉💪
2022 — A Year of Firsts!
We hosted our first-ever Legs Against Lyme Walk and our first Lyme and Tick-Borne Disease Summit, bringing our community together in powerful new ways đź’š
Plus, we welcomed our first full-time educator, expanding our outreach and impact across Central New York!
#cnylymealliance #lymeawareness #CommunityImpact #MilestoneMoments #lymediseaseawareness #TickAwareness #tickprevention #lymedisease #lymewarrior #lymedisease #ticks
0 CommentsComment on Facebook
đź’š TODAY is our 6th Birthday! đź’š
On 11/18/19, we began our journey as a not-for-profit.
Today, we celebrate with a simple ask:
👉Help us celebrate with a monthly or one-time gift:
Give $6 for Six Years
$11.18 for 11/18
$25 for 2025
$60 for Six Strong
$118 – “Founders’ Circle” - A bold way to honor 11/18.
$600 – “Sustainers of Six” - $100 for every birthday since founding.
$1,119 – “Legacy Gift” - supporting a sustainable future
Every gift fuels awareness, advocacy, and support for the Lyme community. Thanks for supporting us on this journey, and now you can be part of the next six years. đź’š
Make a gift here: cnylymealliance.org/donate-birthday/
#lymediseaseawareness #TickAwareness #LymeAwareness #tickprevention #LymeDisease #Ticks #lymedisease #ticks #lymewarrior
2 CommentsComment on Facebook